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  • lafleck posted an update 4 years, 10 months ago

    Good morning. I’m new to this but wonder if someone can offer reassurance perhaps. My husband was diagnosed with MM in January this year. Within a week of diagnosis he commenced 16 weeks of VTD. Unfortunately, as this was ending he became quite ill, where he was hospitalised with AF and an elevated diaphragm was also diagnosed. The doctors treating him feel this was a side effect of his treatment. So more drugs for the AF and the elevated diaphragm appears to be a permanent state of affairs. 3 weeks ago he had a session of cyclophosphamide ahead of a very successful stem cell harvest 10 days ago. He is soon to undergo some routine health screening ahead of a planned return of his stem cells in early July. He really hasn’t been well since the cyclophosphamide and I was wondering if anyone had experience of this time in their treatment. His appetite remains pretty nonexistent, he feels shivery most of the time, his stomach feels gripey pretty constantly…. the list goes on! Interestingly, his hair and beard have only started to fall out in the last few days. We are quite concerned that this general malaise he is experiencing might jeopardise the treatment planned for next month. When did others feel ‘better’ post the cyclophosphamide? Thank you