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  • davebaz posted an update 4 years ago

    I am a 78 yr old patient diagnosed, approx 18 months ago, with IgG light chain myeloma with rib cage osteolytic lesions and a suspected small pulmonary embolism.I am currently ‘in remission’ after 8 cycles treatment with Velcade, dexamethazone and cyclophosphamide. Last August, after stopping all treatment, except zoledronic acid, I developed a continuous dry cough, acute breathing difficulties and a mild temperature. This was months before anyone thought of Coronavirus. I was admitted as an inpatient during which I was administered passive oxygen and i.v. antibiotics. The condition resolved and I was discharged after 7 days. I recently received the official NHS letter (via my GP) stating that I am considered at very high risk of severe illness should I contract the Coronavirus and that I should impose strict sheilding. I take ‘severe illness’ to mean severe pulmonary distress requiring respiratory ventilation and with a high probability of a terminal outcome. Recent statements in the media by senior medical authorities have suggested that active ventilation (machines) will be reserved for patients who are likely to benefit the most ( younger, fit and with no significant disease) and are most likely to survive the viral infection. I cannot see that a patient with my history would qualify. I am beginning to think that should I contract COVID-19, I will probably wish to decline hospitalisation and be treated at home with simple palliative/terminal care and hopefully have some final contact with my family. I would welcome comments from any other myeloma patient facing a similar dilema.