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  • louiseb posted an update 4 months, 2 weeks ago

    Newly diagnosed – To say it was a shock is an understatement.

    My GP decided to check out my borderline anaemia after doing some routine blood tests. Once checked she was as certain as she could be that it was MGUS so referred me to see a haematology specialist.
He was concerned by my Bence Jones urine result so sent me for further tests. 

    My results are:
Paraprotein 8G/L IGg kappa
Normal blood calcium
Borderline kidney function
Mild anaemia: haemoglobin 115g/L
Neutrophil count normal: 1.92
30% myeloma cells
No bone legions

    If it wasn’t for my kappa light chain level I would have been diagnosed with smouldering myeloma, unfortunately my result is just over 100 , it’s actually 116. 
    Because of this I’m currently being considered for the more intensive High Dose Therapy including an autologous SCT. The MDT across Leeds and Bradford are discussing my case on Monday. 
    Is there anyone in the forum who is or has been in a similar position? I’d be really interested in hearing your stories.