Hi. Thought I would finally join and tell my experience. I was diagnosed with myeloma in August 2013 and started treatment in October. Started with the standard CTD. Had various problems the main one being massive weight loss. I started the treatment weighing 185lb and 6’2″ and at my lowest I weighed 155lb. And despite eating some 3500 calories per day blood tests showed that I was malnourished. The main reason for this was that the dex was putting my resting heartbeat up to 90 and sometimes as high as 110 per minute when my normal resting heartbeat is around 60. I have completed 4 out of the 6 treatments and have started to experience some neuropathy in my right hand. My haematologist has now stopped all treatment as my protein levels have reached a level he is happy with. Next step see the SCT team. I have now not taken any drugs for 11 days and I am now feeling almost back to normal. Heartbeat is now back to normal and starting to gain weight. A full 7lb so far. And no longer experiencing the hungover feeling from the thalidomide. Metallic taste and mouth dryness have all gone. So it didn’t take long for normality to return. Now waiting for the next step.
P