[MothasParticipant]

My fist cycle of PAD finished last week and PAD cycle 2 started tuesday. Thought I'd report back since I've not posted for awhile

In cycle 1 I?ve had only mild side effects and apart from a bit of tiredness in the afternoons only mild passages of nausea and no actual sickness.

I?ve had some very small amount of neuropathy but nothing dehabilitating. My hair has dropped like a Christmas tree?s needles on boxing day but I was expecting that.

I?m or less working as normal which is important for me.

I've started a blog
http://bloodandbones.org/

in which I'm publishing as much data as I produce and a few other thoughts on illness, art and life.
Some of you may be interested 🙂

all the best

tom

[meganjaneParticipant]

Hi Tom,

Great blog, thank you for posting the link, I look forward to following your progress on treatment and your watercolour data rendering tests.

Phil and I always knew how lucky we all are to have the NHS and we knew the drugs were expensive but it is interesting to actually see the cost. As Phil was on PAD as well we can see that his six cycles did not come cheap!

Good luck with cycle two.

Megan

[mhnevillParticipant]

Hi Tom

All the best for your second cycle. Will enjoy looking at blog.

Very best wishes.

Mavis

[VickiParticipant]

Great blog Tom, and yes this treat,net doesn't come cheap!

Keep going it will be worth it!

Vicki and Colin x

[tomParticipant]

As others have said Tom Great Blog, you can now class me as one of your Stalkers ha ha.

Well done and Keep well

Tom Onwards and upwards

[MothasParticipant]

Thanks for the kind words everyone. Next week I'll be halfway through my second cycle. It's gone quickly and then perhaps straight into my stem cell transplant. Blimey.

Given I'm interested in tracking all my data I'm wondering if anyone knows of where the costings for specialists might be found, hours etc. Even specific treatments such as SCT. Would be very interesting to know.

again many thanks.

[Author]

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