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• 16th November 2022 at 2:38 pm #147244
  
  tonyb
  

  Participant

  I was diagnosed with MM in Oct 2022 after suffering repeated bladder infections over a three month period.I consider myself lucky to get the diagnosis since I realise how tricky it can be to recognise but had a good GP who did the appropriate blood tests and referred me quickly. My consultant gave me two treatment options- less intensive or D-vid followed by a Sten Cell Transplant. She explained that at 75 I was at the upper age limit for SCT but thought I was fit enough.After some serious thought I opted for SCT but admit I am concerned about this treatment.I am now three weeks into the initial treatment and wonder if anyone else out there of my age is having or had a SCT and can give any advice?

  16th November 2022 at 4:12 pm #147245
  
  12fern34
  

  Participant

  Hi Tonyb I had chemo for four months then a rest period after which I had my stem cells harvested.
  After which I was admitted to hospital I received a high dose of chemo then received my stem cell transplant.
  After which I spent some time in hospital with no serious side effects. I was discharged home where my recovery improved quickly,I still have fatigue days but I just give in and rest.
  I am 70 years old,I wish you all the luck in the world,take care.

  21st November 2022 at 8:37 pm #147247
  
  tony642
  

  Moderator

  Hi Tonyb,

  I am one of the forum volunteers. I had a STC almost 3 years ago, and since then I have not had any active cancer, although I am tested every 3 months for signs of it returning. It is laying dormant so does not give me any symptoms and I am not on any kind of maintenance treatment.

  The STC itself is not a pleasant procedure, but for me it was entirely worth it and Im glad I had it. It has to be a personal choice, but for most people it is a life-extending treatment. I would suggest you discuss it with your medical team. However, as you say you are at the upper age for which treatment is offered, so if you decide to not have it now, you might not be given another opportunity in the future.

  This is a scarey time for everyone that goes through it, but there is support available at every stage. If you need any more information as to what STC entails, and what effects it has, so that you can make an informed decision, please let me know. Don`t forget that we have the peer buddy service where you can talk on the phone or on zoom with someone who has already gone through it if that would help.

  Let us know what you decide to do.

  regards, Tony

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