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• 24th May 2013 at 10:15 pm #102604
  
  AlexB
  

  Participant

  Chris, Peter,

  Rather than further hijack this thread, I'll open a new one on "Back exercises"

  24th May 2013 at 10:34 pm #102607
  
  FOXLEY
  

  Participant

  Hi Peter,
  It sounds like you had more complications to deal with than I did. I do think it important to do as much exercise as possible. If nothing else it strengthens the bones.
  I had not thought about joining a support group. Have you joined one and do you find it helpful? Don't really understand the different approaches to use of Zometa. The Christie gave me 6 months of Aciclovir, saying that they knew that some other centres only gave 3 months but that in their experience shingles was often an issue even after 3 months.
  Hope you enjoy the swimming.
  Chris

  25th May 2013 at 11:10 pm #102608
  
  PeterJames
  

  Participant

  Hi Chris
  Re Aciclovir , as we were both treated at Christie , each consultant must have different approach , I took the drug for approx three months , no mention of shingles !
  I was under Dr Mike Denis , clinical director at the clinic , got superb treatment from him & his team
  Called back this week with box of chocs for the nurses.
  I did meet Dr Cavet at the Radisson Blue Sept open day last Sepember, really good talks plus break out session , you should come to this coming Sept day
  Re support groups , I have been to the Bury Group once pre SCT , I was going to the last one held this week , but hit last minute snag, so unable to go, the next one is on 2 nd July & on 12 th Aug Dr Cavat is giving at talk , I will certainly go to that meeting .they meet from 1 to 3 pm
  It's nice to met fellow sufferes inthe flesh rather than just posting on this forum
  Perhaps we should have a forum reunion
  If the Dr Cavet meeting is of interest to you we could perhaps meet there , I have yet to meet anyone of this forum .
  Two other groups have recently started up , greater Manchester , just round corner from Christie , but they meet from 7 to 9 pm , I'm not too keen finishing a meeting at 9 pm then nearly one hour drive home , the other is at Salford , I am going to e mail them re the content of their next meeting , they meet 2 to 4pm
  Now limbering up for the great swim , also working very hard in then garden as it is now serious planting / growing time time
  Peter

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