[IzzieParticipant]

Hi everyone!

Anybody got aching bones? For some time now – when I get up in the morning – it takes me quite sometime to get going but also my legs and particularly my arms and shoulders ache terribly. When I first was diagnosed I was on a bone strengther – Zometa – but have not had that in quite a while. Also when I was diagnosed I had quite a few X-rays and a MRI scan – no-one has suggested any further investigations – just wondered if it was part and parcel of suffering with myeloma.

[tonyfParticipant]

Evening Izzie, it takes me a while to get going in the morning, I usually have to stretch etc it is a bit of an effort getting downstairs. Usually sit for a while, have several large cups tea, sometimes take two paracetamol, but then take the dog out for an hour or two across country!
Since diagnosis just over two years ago I have been on penidronate infusion, once a month and daily adcal tablets. I think that at my next clinic appointment I will be taken off the penidronate.
Tregards
Tony F

[mhnevillParticipant]

Hi Izzie

Yes, aches and pain are part and parcel of my MM. I have changed my pain control recently. I now take tramadol and paracetamol. I stopped taking anti- inflamatories as I am worried about the effect on my kidneys. I have just started sone Alexander Technique lessons to see if that will help.

I’m surprised you aren’t still on Zomets. I thought the guidelines now said everyone should have it, whether or not they currently have bone involvement. I have been having four weekly infusions for well over two years and feel certain they have helped my bones which were in a delicate state.

One word of advice though, if you are going back on them, get any invasive dental work done first. I have had some problems with this and have to be referred to the a Dental a Hospital for ant root work.

Very best wishes.

Mavis

[IzzieParticipant]

Hi Mavis

Thanks for your reply. I am in hospital at the moment – had the dreaded Melphalan Thursday – sick virtually straight away and they gave me an injection which helped considerably. Stem cells returned on Friday – felt queasy so they gave me another injection. I feel OK at the moment – just starting to feel a little tired.

Thanks for the reminder about the Zometa – I had heard that before and must remember to ask – although I am on a clinical trial so wondering if that makes a difference?

Thanks again and my very best wishes
Izzie

[HelenParticipant]

Hi Izzie
Good luck with the transplant, hope you have an easy ride. Keep drinking as much as possible!
The zometa is usually stopped for a few months over the transplant time, I restarted mine at the 3 month mark on the myeloma xi trial.
Love Helen

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