I’m not sure if this should be in the ‘end of life’ forum or not, but I at least know that nobody here will think it inappropriate or gloomy (as non-sufferers sometimes can). I am in excellent health at the moment (SCT 12 months ago, 66yo Male, good response to treatement) but I am going to move house and would like advice if anyone can give any.
I am only going to move once, from the too-large house one mile from the town centre, which was left for my use when my late wife died (one year before my own diagnosis). I am going to move to a house in the town centre with three bedrooms ideally, close to the shops, station, doctors, river walk etc. I am not financially-challenged and can make adaptions if needed.
But to help me, it would be useful to know what physical and health problems are likely to come up whenever I get to end-stage myeloma, as I know I will eventually, in that house. I know that increasing bone fractures can be an issue, that infections can stack up, but are there any practical things I should look to include? Good Heating, Ease of access to the property (so maybe ruling out flats?). Are there things that you have noticed but I cannot yet know about?
I do currently live on my own, but my partner may eventually live with me. I do know that in some cases live-in care could be useful, but really I am looking for help with things that other sufferers or family/relatives/carers have come across and thought “I wish I had known that earlier”
Thanks very much for any ideas you can give.
