[GeorgeWParticipant]

Hi to everyone on this site I have never posted before but have read many peoples experiences since my dad was diagnosed with light chain myeloma in Oct 2009. I have gained much optimism and comfort from this site. I wondered if any of you have any experience or thoughts on doing a 2nd stem cell transplant my dad so far has had CDT, 1st stem cell transplant in Aug 2010 where he got 21 months remission and has recently had 4 rounds of velcade. He now has the choice of another stem cell using the cells they harveseted the 1st time or waiting for the myeloma to activate again and then go on revlimid. Does anyone have any views? Sorry to ramble on x

[tomParticipant]

Hi Georgina

Well I haven't had a 2nd i have only had one.
Would I have another?? am not sure Georgina as I understand treating MM with Drugs with No SCT is a good way to go I think at the moment.
Sorry to hear your Dad's SCT has failed.

Good Luck in the Choice your Dad makes.

Tom Onwards and Upwards x

[GeorgeWParticipant]

Thank you Tom for taking the time to reply to me, I tend to agree with your feelings just worry that we may be missing a golden opportunity. Are you in remission from your SCT or are you taking any maintenance drugs at the moment?

Hope you dont mind me asking x

[ronnie17Participant]

Hi Tom
I had SCT 28th dec so still fairly new. When did you have yours and are you still in remission

[tomParticipant]

Hi veronica and Georgina

No problems please ask away about anything.

I was diagnosed in Jan 2009 first line of treament was CTD I had 5 courses of it, that led up to my SCT in December 2009 in Castle Hill Hull.
Now in remission and Drug free now 😀 and I now only go see Consultant every four Months.
Dont forget ask away things i cant help with some one will nip in and help

Tom Onwards and Upwards xx

[Author]

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