Hi CWTX, I’ve been thinking the same thing – my partner was also diagnosed in June, firstly with MM and then with Al Amy, which has affected his heart. After two cycles of Velcade, Cyclophosphamide and prednisolone, and four more to go, his mobility is very limited and he struggles to eat. The fluid on his lungs is now under control, and after the first cycle his light chains have reduced by over 70%. I think most people find the chemo gruelling!
He wasn’t well enough to attend a physiotherapy appointment recently, but I imagine they’ll have some good muscle building exercises – we’ve started doing some at home anfter watching a couple of YouTube videos.
A heart specialist suggested a pedal machine, the sort that fits under a desk, so that’s something Im going to buy as you can build up the resistance level gradually. He’s joined the Al Amyloidosis private Facebook group, and there are so many encouraging stories from people who’ve been in remission for years and are walking miles again, albeit slowly in some cases, and even running and returning to work. Sending you best wishes, Katy
