[pedro16Participant]

Hi Everyone.

I hope that you are all as well as can be expected.

I’m just commencing cycle 2 of my new line of chemotherapy which is Belantamab Mafodotin ADC (approved by NICE in June of this year) and wondered whether anyone else has been proscribed this treatment?

The reason I ask, is that cycle 2 has been altered and I do not receive the ADC infusion, just Bortezomib injections and Dexamethasone tablets, along with other medication taken at home, as well.

As you would expect, the Haematology Consultants will be looking at what they believe is the best for the patient and I fully support this, especially as mine is excellent.

Thanks Pedro.

[rabbitParticipant]

Hi Pedro16,

I am not on Belantamab yet. However, when remission ends, it could be my next treatment, so I have been reading up on it.

You mention in another post that your platelets are at 11! Although protocols vary, there seems to be unanimity that a platelet count below 25 means that Belantamab treatment has to stop for a while.

Please take it easy and try to prevent any bleeding. If you are having turkey at Christmas, maybe hand the carving knife over to someone else!

All the best.

Rabbit

[pedro16Participant]

Hi Rabbit.

Removing the carving knife from me at Christmas, would entail someone having to wrestle it from me. That said I might invest in a butchers apron and cut proof gloves. 😂

The Belantamab Mafodotin means that I’m having three weekly checks on my eyes and have to have drops in them four times a day. I suppose it’s good news as it has been caught early, but the Ophthalmologist believes that I have the early stages of Glaucoma. Oh well, it’s just another ailment to add to the list.

With the low platelet count, below ten and they said that they would infuse me, but as my last blood test result showed an improvement (24) I was ok. The second cycle there’s no Belantamab Mafodotin, just Bortezomib and Dexamethasone. You could be right with what you said about the platelets and it’s something that I will ask my Consultant when I see her next.

I do know that NICE have been very specific about treatment breaks and when treatment will be allowed to continue, or stop.

I’ll try to keep you (and others) updated as I get further into this second regimen of eight three weekly cycles. Then it the ninth onwards just Belantamab Mafodotin as a maintenance. Well, that’s if it works for me, as I am rather problematic (had to withdraw from the RADAR Trial, Refractory to Lenalidomide, two stem cells transplants giving me eighteen months) it seems never ending, but I’m not about to give up!

Pedro.

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