[nordicParticipant]

Have had 2 months of this treatment now of Belantamab Mafodotin along with velcade and dexamethasone over a weekly course of 6 months with no problems of note to mention, I get a bit fatigued at times but this can happen with any treatment. Have had 2 eye tests done so far and have no eye issues so far. My next dose of Belantamab is 3r Feb. Saw one of the doctors overseeing my treatment this week and was very surprised to find out that even after just 2 rounds my levels have dropped a fair amount. With 4 rounds to go results so far have been very encouraging for me. Hope those who are on this treatment have the same experience and results that I am currently have.

[pedro16Participant]

Hi Nordic.

Pleased to hear that things are going well.

You’re actually one cycle behind me, as my 4th commences on the 26th January. There is a difference though, as my regimen lasts for eight months and not six. Then if things go according to plan, I believe that the Belantamab Mafodotin becomes a monthly maintenance infusion.

Apart from having the early onset of Glaucoma (which isn’t related to the BVD regimen), I was told that my eyes are ok. I do have a problem with a low platelet count, so Charlotte (my Consultant) has dropped the Belantamab Mafodotin for my 4th cycle. So, out of the four cycles I will only have received two infusions, but I’m told that this isn’t unusual.

Anyway, I hope things continue to improve for you.

Kind Regards,
Pedro.

[nordicParticipant]

My treatment Belantamab Mafodotin had to be paused last month as after 2 treatments I developed some eye problems, bad case of dry eyes for about 5 days before it started to get better. Still have some eye issues still but very much better now. Had a very comprehensive eye examination at hospital eye clinic 2 weeks ago, had some scratches on the eye and what they term micro-cysts in the eye blood vessels. Was only using dry eye drops quite often so they proscribed me Xailin night gel and must admit it has made a big difference in my eyesight recovery. my eyes have recovered well these past 2 weeks and now have another eye test in 2 weeks. Hopefully they will be good enough to restart Belantamab Mafodotin, results so far have been amazing in reducing levels from 10.7 to 5.4. can put up with with some eye problems if results continue to be like this, might finally have a much longer remission this time.

• This reply was modified 2 hours, 59 minutes ago by  nordic.

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