[alpenatorParticipant]

Hullo everyone.
My recent journey started with a visit to my optician and ultimamately led to my diagnosis.
My main concern at the moment is my worsening vision and I wopuld welcome any views on others' experiences

[DaiCroParticipant]

Hi Anthony,

Welcome to the MUK forum… as always I will say I wish you were not here but as you are let's try make the best of it. 🙂

I had real bad trouble with my vision following my SCT, especially as I had only purchased two pairs of varifocals and a back up pair of prescription sunglasses a few weeks before the transplant in March 2010. 🙁

My problem was unusual inasmuch as my prescription improved by just over 10 years. That is my prescription was slightly better than that of 1998. My Consultant shook her head, having not heard of such a change. So… I went back to my optician and had new lenses fitted (Specsavers).

But now that we are trying to find me a treatment to keep me going and find me some time the problem has reoccured. I am on Velcade for the 2nd time and my vision has deteriorated quite badly… I have several pairs of glasses but none of them work, so I am going back to Specsavers to see what they can offer. I am sure that they will solve the problem short-term but I am also sure that the problem will change if my treatment changes… but hey & Ho! 😛 😀

Talk to your consultant… see what s/he says but I doubt that they can prescribe anything to improve your sight, short of going to your opticians and forking out for new glasses.:-0

All the best.8-)

Dai.

[Gill20Participant]

Hi Anthony,

I think I read on another post you have paraprotein anaemia, this could be the cause of your blurred vision as it is a common symptom of anaemia.

I too had blurred vision before I started treatment in July 2011. I went to the opticians who was puzzled and could not explain it, the blurred vision fluctuated sometimes it was really bad and other times only slight. This could have been because of the anaemia although my optician did not pick it up.

After my SCT in December 2011 my eye sight deteriorated and I have had to change my glasses twice since then, my vision deteriorated by 50% in one eye and 40% in the other when I first changed them and there was no mention of cataracts. As they were still deteriorating I asked my doctor to refer me to the eye hospital which she did and I have been diagnosed with cataracts. My next appointment is in a couple of weeks and I will find out if and when I am having them removed.

I thought that it was the treatment that caused the cataracts but I have been told that I was predisposed to getting them but the treatment has just speeded up the process.

I am fit and well after my SCT in January 2012 and am in complete remission and now I know what the problem is and that it can be sorted I am just very pleased that the treatment was successful.

Gill x

[alpenatorParticipant]

Thanks Gill for your response.
I am also finding that ny vision changes several times a day.
I also know that I have cataracts starting and can recognise the blurred patch caused by that. Optician said that they were not at a stage to be reviewed but I will ask again when I see him this week.
All keeps yopu on your toes, doesn't it?

[alpenatorParticipant]

Thanks Dai
I think that I was reconciled to the fact that it was an optician solution and I hope that this is so in a way.
I think we should be eligible for free specs 😀

[alpenatorParticipant]

Optician today told me that changes in my prescription would have little benefit, and that the best option now was to wait for the treatment to take effect.
He suggested that I buy a pair of 3x off the peg reading glasses and to make sure that there is good light for reading, I am using a camping head light for this, it works.

[alpenatorParticipant]

Glad to report that my eyes are getting better after 1 week of my CTDa chemo.
Didn't expect such quick results but they are there so blood must be thinning.
Have and at 'em

[meganjaneParticipant]

Hi Anthony,

That is great news, I am glad to hear your eyesight is improving. I hope you are soon feeling less ill from the chemo as well.

Megan

[Gill20Participant]

Hi Anthony

That is great news I am so pleased for you. i know how difficult it is when your sight is not good. I went to the eye hospital a couple of weeks ago and my cataracts have been confirmed and I have been referred for surgery. I have been told that not only will they remove the cataracts but that they will correct my vision and I should no longer need glasses. This is going to be very strange as I have worn them for 52 years. I have been told that the first eye will be done in 2/3 months. I just hope they do the second one quickly or things are going to look very lopsided 🙂 I struggle with the light I may try the campling light myself.

Good luck with the treatment.

Gill x

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