Hi all, been a while since I’ve been on here, tbh I’ve been trying to forget about my condition for a while, it was taking up every minute of my life, really needed a break.
However, my wife came across an article in the New York Times about a possible cure, or extended remission at the very least. Here’s the link, though it is behind a paywall, we managed to get it open and read it, very promising.
https://www.nytimes.com/2025/06/03/health/multiple-myeloma-car-t-immunotherapy.html?campaign_id=51&emc=edit_mbe_20250604&instance_id=155851&nl=morning-briefing:-europe-edition®i_id=167513919&segment_id=199245&user_id=cb9feaf569354b177d511aad37f0c53b
It was developed in China and was taken up by Johnson & Johnson in the US, where they have been doing trials, initially on patients at the end of treatments with very good results and are now organising trials on patients at earlier stages.
Basically they extract white blood cells and then genetically alter them to kill Myeloma cells, and then infuse them back into your blood. The results have apparently been astounding and they are indicating that this may be a cure. If so there is hope for us all.
Here are a few other links regarding this procedure.
https://www.jnj.com/media-center/press-releases/early-results-from-johnson-johnsons-trispecific-antibody-show-promising-response-in-heavily-pretreated-multiple-myeloma-patients
https://www.jnj.com/media-center/press-releases/single-infusion-of-carvykti-ciltacabtagene-autoleucel-delivered-lasting-treatment-free-remissions-for-at-least-five-years-in-patients-with-relapsed-or-refractory-multiple-myeloma
https://www.prnewswire.com/news-releases/early-results-from-johnson–johnsons-trispecific-antibody-show-promising-response-in-heavily-pretreated-multiple-myeloma-patients-302471267.html#:~:text=Single infusion of CARVYKTI®,relapsed or refractory multiple myeloma
https://www.drugtargetreview.com/article/155770/cilta-cel-a-new-era-in-multiple-myeloma-treatment/#:~:text=New cell therapy%2C Cilta-cel,cell in the bone marrow.