Coming to terms

This topic contains 51 replies, has 17 voices, and was last updated by  DaiCro 12 years ago.

Viewing 7 posts - 46 through 52 (of 52 total)
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  • #86957

    Kes
    Participant

    Hi Peter

    It's reassuring to hear that some normality returns after the drug cycles are finished …
    Really pleased to hear that your SCT treatment has started moving xx their not hanging about !! Which is great , will you be in hospital over Xmas ??

    4 million sounds mega hope they get the little blighters !!

    Good luck & constant good progress with all upcoming treatment

    Regards
    Karen 🙂

    #86962

    Kes
    Participant

    Hi Ange
    Thanks for the kind reassuring words
    I hope you have managed to get started with cycle 5 ok xx
    I will find out tomorrow i(Monday) if I start cycle 6 & what all my results are since the past 3 weeks !!

    Hope you get on ok with this cycle & no more infections

    Regards
    Karen xx

    #86963

    AngieJayne
    Participant

    Hi Karen
    Three days into cycle 5 now & pleased to say theyve been amongst the best since treatment begun 🙂

    I am however, still struggling with fluid retention so am very short of breath & cannot walk far at all. I was prescribed furosemide for this but had a very bad reaction after just one tablet. I discovered the next day that furosemide belongs to the group of sulphonomides, which I am hypersensative to & this is recorded on my medical records, so should not have been prescribed. Having COPD (Emphysemia) doesnt help either. Anti biotics course finished now, so shall have to see how things go from hereon.

    Hope all goes well for you today
    Ange xx

    #86964

    Kes
    Participant

    Hi Ange
    Pleased treatment started & your ok my love xx
    I went to clinic today for general 3 weekly bloods & they have decided not to carry on with cycle 6 !!!! I am now jus waiting for a phone call to have the Hickman line fitted , which means 2 days in hospital & large dose of IV chemo ( the same as the oral version I was taking ) .. Then not sure what happens then ????
    I'm just hoping I get a few normal days without any side effects ( dizzy , shakes , stickies etc etc ) before the SCT

    Im glad your off your Anti Biotics & they have got other meds sorted
    Take care & thanks for thinking of me today it is very kind of you xx

    Regards
    Karen X

    #86958

    PeterJames
    Participant

    Hi Karen
    Finished & passed all my medical tests on Fri. Have you had all yours ?
    Been at Christies nearly all day , they started off the chemo with a big dose of cyclo what's it , sorry cannot be bothered to check out the full name
    Given a goody bag to take home , pills & needles to self inject for the next week to tempt out the 4 mill little blighters , who counts them ?
    Next Mon they will check progress, if not ready check next day, they think back end of the week probable harvest date
    Then I can have a break over Christmas , which is very nice as we have big family do's , plus early Jan Wife & Daughter both have birthdays, so I will have some thalidomide to keep the piraña at bay , then in for SCT on 17th Jan
    Good news,staff, food & coffee really nice
    Bad news, eyesight back to c–p already & I had an eye test booked for tomorrow !
    Still , onwards & very positively upwards, thanks Tom !
    Kind regards
    Peter

    #86965

    DaiCro
    Participant

    [quote]I am in full agreement that a positive attitude & outlook is important & extremely beneficial and this is something that comes with time following a diagnosis.

    However, with regard to feeling down and utterly depressed, which can be as a result of many factors for each individual, I disagree entirely that it is a matter of "choice". While it is perhaps nothing to do with "the rest of us", our support will no doubt be beneficial & appreciated by those who choose to share their experiences and I would encourage all who feel comfortable with sharing to do so.[/quote]

    Hi Angie Jayne,

    Clinical depression is no joke and can be overwhelming and support should be garnered wherever it is available. But the sort of depression I was/am talking about is that connected specifically to or with Multiple Myeloma.

    Receiving the diagnosis of MM with its terminal prognosis can also be overwhelming and can take the person involved into a very dark place… a place where it is very easy to give in to negative thoughts and negative actions. Trying to come to terms with treatment while in this frame of mind can be devastating for the patient and extremely difficult for the carer/s.

    It is my contention that that person should try to fully understand the nature of MM, the types and length of each treatment and the overall prognosis of the disease. The type of support available on this board will show time and time again, through personal endeavour and experience that a positive approach to both the disease and the forms of treatment, gives a much more positive outcome than when tackled with a negative, defeatist attitude. Remember, I am not talking about people with a history of depression or somebody who has clinical depression… I am talking about those who find out that they have a terminal disease and who allow themselves to be overwhelmed by that fact and the treatment that comes with it.

    Those people have a choice. They can give in to dark thoughts and take some sort of comfort from dark places or they can learn from the experiences of those who have gone before them and take comfort from the positive approaches and outcomes that those people offer as a way forward with MM.

    You give 5 examples of places to go to share their experiences of depression, anxiety and fear… and I have no doubt they offer good advice… but it is my contention that visiting such sites can confirm anxieties, fears and forms of depression that may not yet truly exist.

    I woud encourage anyone who visits or joins this site to take a good look around… not only at this board but at the whole site in general. The people who frequent this board have all been there… received the requisite support and experiences, make friends and use all of this to move on with a far more positive approach and outlook than when they first came on board. sometimes is is just too easy to give in to dark feelings and say 'Help me because I can't help myself'. I believe that we help people help themselves… through a positive outlook in a supportive environment and as often as not that is all they need.

    Of course, if true depression sets it that is an entirely different matter.:-|

    Regards

    Dai.

    #86959

    Kes
    Participant

    Hi Peter
    Really pleased all your tests were good & things are now on the move xx
    I went to clinic today expecting to pick up my 6th cycle of drugs but they decided to stop all drugs & I'm just waiting for the phone call to go into hospital for a couple of days to have Hickman Line fitted then large dose of IV Cyclo not sure what happens after that ….. I suspect i will be sent home with the injections . It's nice knowing I don't have to get up tomorrow & take 37 tablets ..

    Looks like we will be having treatment around the same time, I'm having my treatment at Nittingham City Hospital ..
    It would be nice to be home at Xmas but depends on how things go I haven't been given any dates as yet

    Good luck with everything & keep in touch

    Regards
    Karen x

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