Hi,
I am new to this forum & I guess I am looking for some optimism? My husband was diagnosed with smouldering myeloma in 2015 which progressed to active disease in 2017. He had 4 cycles of VTD, 3 of DT-PACE followed by an ASCT. His body was literally left ‘battered’ and he has not been able to work since. He has to use a stick to walk due to peripheral neuropathy, and feels like an old man – he’s only 60! He had a couple of years in remission then relapsed last year. He then had daratumamab with velcade & dex which he had a really good response to, but since the maintenance dara his paraproteins have risen again. Now he is in a huge amount of pain & starts lenalidomide & ixazomib with dex tomorrow. I am really hoping this works & gives him some respite.
