Hello. I was diagnosed with first stage myeloma and al amyloidosis with kidney deposit in December of last year. I was caring for my husband with advanced stage cancer at that time, and he sadly passed away in March of this year. In December I used alternative supplements to hopefully stop the disease from progressing. I attended a German clinic in April/May that used alternative treatments and my blood results impoved, and they have continued to improve. Unfortunately I still have an albumin level of 15 (should be 35 plus) and a protein loss that varies from 4g to 8g. Also in the last two weeks my symptoms have got worse – burning, aching in my shoulders and arms, head, and ribs. I also have tingling, swollen legs and swollen ankles. Did any of you have these symptoms when you were diagnosed?
My haematologist is advising the cyclophosphamide, velcade, dexamethasone treatment. Have any of you tried the velcade and dex treatment without the cyclophosphamide?
I am really scared, particularly now that my symptoms have increased.
I would appreciate any help you can give. Thank you, Joyce
