Morning Mal.
I'm glad that you find my posts helpful. That's why this forum is here to pass on advice and to and support each other. I'm sure over time you'll do the same for others that come on board.
It's a frightening disease and the first months are hard to get through but it does get easier as you get to know what the right way to go about thing is. It's a very personal disease too so what works for one may not work for others and how we react to the drugs is also different. It's important to listen to your body and not over do things. If your tired, and will get tired, rest up if you feel different or strange mention it to your medics, you can't be to careful. Side effects from the drugs are also important to report and it helps to keep a diary of everything so you can establish a pattern. As Tescos say every little helps. If you have questions for your consultant write them down as they pop into your head and take them with you when you have a consult – that goes for Karen too. Write down the answers too because there is an information over load and we do forget things.
I was a night owl too when first diagnosed and it was my back too. I used to run a lot, up to full marathons, till my back started to give me discomfort. I had back ache for 18 months before I was diagnosed by which time most of my spine had suffered a lot of damage. Bone strengthener Zometa has helped stop the damage getting worse but it was very painful at the start of treatment. I could only sleep sitting up and had lots of painkillers of all descriptions. I've managed to cut down on the pain killers now but I can't walk very far or do much around the house. So reading, tv and music is a big part of my day now. I like your choice of music 😉 I'm in for an op on my back on Saturday hopefully that will give me some help with my back – I've lost 3 inches in height!
Sorry to hear about your heart attack that must of been a shock too.
Well I've managed to ramble on again and again I'm blaming the steroids.
The journey ahead will not be smooth you will have good times and you will have bad times but take each day as it comes and enjoy the good days and fight the bad ones.
Every day is a gift
Use it.
Andy