Date for SCT

This topic contains 16 replies, has 6 voices, and was last updated by  rebeccaR 10 years, 6 months ago.

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  • #115285

    Izzie
    Participant

    Hi Rebecca

    To-day is day 16 and they were going to let me home but unfortunately have had three temperature spikes of 39 degrees and they like you to have at least 5 days at a normal figure, makes sense because if you go too early you end up coming back in. So that said Monday at the earliest – which I am quite happy with. I do feel better – no pain – just tired which I can cope with. The treatment I have had has been excellent – nothing too much trouble – praising you all the way for the way I’ve coped – sometimes we all need a bit of that!!! And think sometimes we are too hard on ourselves.

    Hello to everyone out there who sent me there good wishes – much appreciated and certainly spurred me on.

    Izzie

    #115286

    rebeccaR
    Participant

    Congratulations, knowing you’ve a date makes everything go so much quicker. I think it is wise to wait a bit longer and go home with less chance of going back in. I have never spoken about it but did a very stupid thing when I left hospital. The day after going home I had a temperature and was hell bent on not going back in – I hated absolutely everything about my time in Leeds – especially the extremely cold room, how catering used to forget my food and then give me a sandwich etc – I was adamant I wouldn’t go back, cried etc and my hubby – not aware, as I, about the importance of temperature pacified and agreed. Had the temperature for nearly 2 days but then became very ill, bad chest etc and had to go to my local hospital for antibiotics etc.etc. Was incredibly ill for a while and when I went back to Leeds for my only check before I insisted on going back to my usual hospital they were staggered at what I’d done, told me I could have died, and had I gone in straightaway the ensuing illness would have been stopped in its tracks. I made myself very ill and put my family through a very worrying time and were I ever, ever, to do it again I would go straight away to the hospital if my temperature rose. I was very lucky to have got away with it but it hampered my recovery for quite a while. So do listen to everything the hospital tells you on discharge – I am shame faced that I didn’t but in fairness did, at the time, feel I left hospital with post traumatic stress! So enjoy the last weekend of not having to be responsible for your health and leaving it in the hands of experts as it can feel a little daunting when you’re home without the safety net around you. You sound in good spirits Izzie and this can only get better when you get home. Well done you, give yourself a pat on the back because you certainly deserve it. It does make you feel stronger knowing what you’ve managed to get through “relatively” unscathed.

    Rebecca

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