Thank you for posting on the Myeloma Discussion Forum. My name is Debbie, and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that no-one has responded to your post to date. I suspect this is because the situation you describe with your mum is a complex one, and there are many potential reasons for the drop in her haemoglobin level, which may or may not be connected to her myeloma diagnosis/treatment. It may be that none of the forum users have had the specific experience you describe. I would suggest that you/your mum ask the doctor or nurse specialist responsible for her care to update you on their perspective of what is happening. It may be that the doctor is still investigating the cause, but if this is the case they should be able to explain what they are investigating so that you and your mum are kept informed.
If you have any further questions, or would like to talk things through, please feel free to call the Myeloma Infoline on 0800 980 3332 – I or one of my colleagues can clarify things for you further. Alternatively you can email directly to askthenurse@myeloma.org.uk.
With best wishes, Debbie
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This reply was modified 8 years, 6 months ago by debbieg.
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This reply was modified 8 years, 6 months ago by debbieg.