[rabbitParticipant]

Sorry for typos in my last message. Dexamethosone always messes me up in that respect for a while 😀.

“eatablish” should be “establish”.

“Some people or too frail…” should be “Some people are too frail…”.

Regards
Rabbit

[myelomamumParticipant]

Hi Rabbit

Many thanks for reply , good to hear your remission news , are PP levels low or zero ?

I dont see consultant until 22 Nov but i will share my treatment plan , I am a little nervous withe the wait as even though i have had radiotherapy my back is still achy, i worry for anymore fractures. I am continuing to work full time as it distracts my mind

[chris55leesParticipant]

Hi Sue ,

When I first started treatment my paraprotein was about 38 and my bone marrow showed 10% plasma cells .

I have been interested in the treatments and what will be come available .I have found this site and also an American site
Health tree foundation for Myeloma (Myeloma Crowd News – I type in

[chris55leesParticipant]

Sorry I pressed send too early .

Also I have contacted Myeloma UK and they are always very helpful as are my consultants.

Best of luck

Chris xx

[myelomamumParticipant]

Thanks for getting back to me Chris , I will ring Myeloma UK once i get my treatment plan. Enjoy your time in Australia- Sue xx

[rabbitParticipant]

Hi Sue,

At diagnosis, my paraproteins were 31 at diagnosis, but they have been ‘undetectable’ for a long time now. However, paraprotein tests are not that sensitive.

A more sensitive tests relates to the type of MM. There are two types of “light chains” in everyone’s blood, called kappa and lambda. In myeloma, one of those two is – for most patients but not all – there in huge quantities.

In my case, for example, my kappa light chain was something like 4500 at diagnosis but now in remission it is around 30.That is a much more healthy level. The ratio of kappa to lambda is often used as a fairly sensitive test of myeloma levels.

Regards
Rabbit

[Author]

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