[julienewcastleParticipant]

I’m a new patient, just started CTD on Saturday. I’ve noticed my mouth is dry and has an uncomfortable taste. Is this due to my drugs or the fact I’m taking an anti-nausea drug called Metoclopramide? I’m getting fed up with brushing my teeth and sucking mints!!

Julie Newcastle

[CarolsymonsParticipant]

Hi Julie
I had an awful metallic taste while on CDT and was really fussy about what I felt like eating…nothing tasted right. I don’t remember a dry mouth then, although I do have that now after SCT. It is a problem as lack of saliva may lead to increased tooth decay….something I don’t want to face as well as everything else. Maybe your dry mouth is from the anti sickness drug?

Carol

[julierennieParticipant]

Hi

I have the same too, a metallic taste in my mouth.  I think it must be quite common.  My food tastes altered and I no longer enjoy a glass of wine or gin and tonic which is a pain.  Hope your treatment is going well.  I started treatment 3 months ago, at Freeman, Newcastle.  It’s been a bit of a bumpy ride but hopefully we’ll get there.  Take care.

Julie

 

 

[mhnevillParticipant]

Hi Julie

I also had metallic taste on CDT. That and thinning hair were worst things. I used to crave salt and vinegar monster munchies as they cut through the taste buds!! The two compensations were ….. I. I got into remission and still am after 2 years, and. 2. I lost weight!

Good luck as you travel on this MM journey.

Mavis x

[julienewcastleParticipant]

Hi Mavis

Many thanks for your post – it’s great to hear of other people’s experiences as I start on my Myeloma journey!

My two bugbears at the moment are being wide awake at 3am and not being able to get back off to sleep and my mouth.  For the past few days I’ve taken a sleeping tablet when I go to the loo at midnight and they worked! However, the doctor only gave me a few and I don’t want to become dependent on them and as you say, they leave a vile metallic taste in my mouth all day. I love crisps too but can’t eat them now as my tongue is sore (due to sucking boiled sweets?)

Hearing your brilliant news about remission gave me a massive boost!!  I’m only just coming to terms with the fact I have cancer. At first I didn’t feel too poorly but as my 3rd course is ending I have no energy and struggle on some days. I have to take steroids every day due my Thalidomide rash so that doesn’t help! I want to eat all the time and have put on loads of weight which has upset me so hearing you’ve lost weight now was another boost to my morale!

I’m so glad you got in touch – good luck for the future!

Julienewcastle

[alpenatorParticipant]

For the nausea, try Gin Gin Chews from Holland and Barrett (and elsewhere) I found/find this much better than the Metoclopramide.
I am now on Velcade + Dex and still have problems with a sore mouth (rather than a bad taste)
You never can tell with these side effects, we MM sufferers must suffer more side effects than any other people.

[Author]

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