Thank you both very much for sharing your experiences. Dave’s reaction is not listed in the info for the drug and seems to have come as a surprise to his consultants.
We have told them of our worries about continuing with the drug but we’re told to wait for the bmb results.
Fatigue seems common with most Myeloma treatments, Dave’s has worsened as time goes on but this is the first time in 9 years that he’s had such a bad reaction, previously just skin rashes which eased quite quickly.
Please keep me updated with your progress, both if you.
