[tishwishParticipant]

Peter had his last Velcade injection on 23rd September and his PP's blood test result was 7.4, he started Velcade when it had risen back to 19. The doctors told us that Peter has received a 50% success. His next blood on 6th November was 9. Peter's treatment now is watch and wait and we do not go back to clinic until 8th January 2014…….scary time at the moment. Peter is still very tired and very quickly gets exhausted.

Love Trish

[eveParticipant]

Hi Trish

Slim is in the same position,except he is on CDR,has been off it for six weeks,:-P

It is worrying,you wonder what is going on with the Myeloma?????,it will not take long for Peter to start feeling better as the chemo wears off,my advice is enjoy this break!!!!,it will give his body time to recover from the battering the chemo has done.
Just make sure you keep him free of infection free,you will notice a difference,he will be eating better and his brain will not be a chemo brain,so please try to enjoy this break.

Slim is having a break to let his platelets recover and also to see if there is another reason why they are not responding!!!!
So bloods taken weekly,BMB end of December.
Unlike you we have no way of knowing how Slim is responding with the Myeloma,as it only shows in the Bone Marrow,no PP for us!!!!,it's just a wait and see game,keep him healthy.

Trish just enjoy this break,make the most of it,then it's back on the roller coaster for another ride:-( love Eve

[sanParticipant]

Hi Trish yes my Mum has stopped Velcade after 2 cycles as her sodium levels have gone down and she was not eating properly and so lost weight and seemed muddled at times, currently in hospital having tests and we thought intially that she had an infection somewhere as her temp flucutated but maybe it was all due to the sodium so reduced fluids now, so not sure what is next for her treatment wise, it is certainly scary for everyone there is so much uncertainty with this illness, the fatigue is awful, lets hope that your Peter feels better soon now that he is off chemo and that you can enjoy your Christmas together and good to hear that the next clinic is'nt until January 🙂 San xx

[Author]

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