end stage??

This topic contains 6 replies, has 3 voices, and was last updated by  max 11 years, 3 months ago.

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  • #88040

    max
    Participant

    hi my mum has stage 3 myloma and is getting pain in her leg my sister is her primary carer and says her leg just went from under her she had to get her in wheel chair she was in much pain she sleeps a lot and gets narky at times she is incontinent and gets loose motions a lot she wont drink has much has she should she has had her chemo tablets with drawn becouse off her low blood counts and is on dexametazone and thamidolide tablets and has morhine patches also oramorth some days she seems ok other days we think shes nr the end can some one tell me when you know the end is nr im on edge every day not sleeping much she is 74 yrs old she dont eat much and has lost a lot off weight

    #88041

    mhnevill
    Participant

    Hi Max

    It sounds to me that your Mum might have spinal cord compression. It could be that which made her legs go from under her. Does she respond if you tap her knee. This as how they diagnosed the tumour on my spine – my legs didn't respond. Incontinence can also be a sign.
    Why not ask her Dr if it could be a possibility.

    Love to you Mum.

    Mavis x

    #88042

    max
    Participant

    thanks she has compression in her discs but this leg collapse is a new symptom today she was very confused too sayiny things that dont make sense

    #88043

    san
    Participant

    Max this is a difficult disease and it may be that simply Mum has an infection or electrolyte imbalance, bloods and urine may need to be taken, talk to her GP or specialist nurse, you can of course talk to dear Ellen or Maggie our lovely Myeloma nurses they can certainly help explain things to you best wishes San x

    #88044

    max
    Participant

    hi mums just told my sister she has a worrying lump in her grion area its not soft so dont think its hernia anyone any ideas

    #88045

    mhnevill
    Participant

    Hi Max

    I think you can have plasmacytomas in the groin area, but the important thing is for your mum to tell the Dr about it. Better to report something that isn't important than let it be missed.

    More love.

    Mavis x

    #88046

    max
    Participant

    thanks mavis mus stuborn and wont let me call dr she says its nowt to worry about but i think it is phoned dr this morning hes going to see her after bank hols just getting hard seeing her in pain

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