[FrancesParticipant]

You’d think having mm would be enough without developing eye problems too. I find I’ve had a bleed in one eye, causing a blurred centre to the vision – this is apparently a myeloma side effect – and I’ve also got a hole in the retina which may be unrelated. I’m seeing an ophthalmic surgeon in a few weeks about this, and the word operation has been mentioned – arrgh. But I also sometimes get dazzling patterns in the eye – these go after a while but are disquieting. Has anyone else had eye problems like this? Do they go away, or do they need treatment?

[tonyfParticipant]

Hi Frances, yes I’ve had eye probs though nothing quite as bad as yours. Mine started with really itchy eyes, had to rinse them couple times a day. Then following eye test at opticians was referred to eye clinic with glycoma, was given eye drops, that appears to have cleared the problem but have to report back in 6 months. This is all very recent and I have been off all drugs for 18 months since my stem cell transplant, so could be unrelated, however haematologist says eye probs are a side effect!
Hope above helps
Tony F

[CarolsymonsParticipant]

Hi Frances
I developed double vision and black floaters in one eye when on CDT. The double vision has improved but the black floaters are annoying. Somewhere I read that cataracts are also a side effect and I have them too, but they may have been from the Australian sun before I was dxd. Who knows?

Carol

[scott9Participant]

Hi Frances

I just noticed your post. I developed cataracts in both eyes and had to have operations to sort them out. I can see much better now long distance but still need reading glasses.

Good luck

Scott

[FrancesParticipant]

Thank you for all comments. I see the eye surgeon next week, and I must confess to feeling uneasy. I can cope with the chemo rubbish, but don’t like the thought of someone messing with my eyes! Wish me luck.

[MothasParticipant]

I developed stys as a result of my PAD treatment. Called ‘velcade’ eyes by my consultant, I still have the residue of them a year on and they can flare up quite quickly.

[scott9Participant]

Don’t worry about having treatment on your eyes. Its a very minor problem in relation to what we have to cope with.

Good luck

Scott

[alpenatorParticipant]

My MM was diagnosed after a visit to my optician with badly blurred vision. He sent me directly to local hospital eye clinic who admitted me on the spot and 10 days later I was home with MM.
My first round of CTDa largely cleared up the vision but I recently relapsed with the first indication being blurred vision again. This is continuing in my 4th week of Velcade + Dex and varies from day to day.
Eye examination revealed pressure on the optic nerve from lesions in my skull ( I have a nasty lump on the back of me head.)
MM is a nasty beast in that it presents you with all of these unexpected pleasures that we have to fight on top of the cancer itself.

[FrancesParticipant]

Apparantly I did have a bleed in the eye, which is caused by pressure and is a result of mm medication, but it seems to have cleared up spontaneously. But my main problem is a macular hole ( a tear in the retina, which they say isn’t caused by mm – do I believe them? Anyway it entails an operation, after which I have to lie on my stomach for a week. Wish me luck.
Sorry to hear about your problems, Anthony. As you say, it’s often the side-effects from mm that cause the problems. It is a nasty beast!

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