Hello and thank you for your post on the forum.
I am sorry to hear that your step mum is experiencing anxiety attacks and struggling to find support, I hope you don’t mind if I also make some suggestions? My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. We do have a number of services here at Myeloma UK as potential sources of support for your step mum – please do pass these suggestions on to her if you feel they are appropriate:
• Talk to someone. The Myeloma Infoline operates from Monday-Friday, 9am-5pm and is manned by Debbie, Jude and myself. We aim to provide information and support to anyone affected by myeloma, and we are also here as a listening ear. You can read more about the service here:
https://www.myeloma.org.uk/how-we-can-help/talk-to-someone/
• Meet others. We have a number of services where carers and family members (as well as patients) can meet with others who may have shared experiences and can be a source of support – this includes Myeloma Support Groups (there may be other groups in the area), Myeloma Infodays and the Discussion Forum for carers on our website. You can find out more about these services here:
https://www.myeloma.org.uk/how-we-can-help/meet-others/
The Myeloma UK PEER programme is another option for your step mum to connect with another person who is also a carer of a myeloma patient. Connecting with someone else who may have some similar experience can be very supportive. Contact through this programme is usually arranged via a one-to-one telephone call. You can read more about the programme and how to access it here:
https://www.myeloma.org.uk/peer-network/
• Finally, do encourage your mum to talk with the clinical nurse specialist (CNS) at the clinic your dad attends about other local sources of support. The CNS may be able to signpost to local services that might be a help.
I hope this has been helpful. If you have any further questions, or would like to talk things through, please feel free to call the Myeloma Infoline on 0800 980 3332 – I or one of my colleagues can clarify things for you further. Alternatively you can email askthenurse@myeloma.org.uk with any questions.
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This reply was modified 7 years, 7 months ago by ellen.