[kathcoopsParticipant]

Hi,

my father in law was diagnosed with asymptomatic multiple myeloma about 2 years ago. He started treatment after it became active approx 12 months ago and had a stem cell transplant in November. Everything was looking great from the transplant until a month ago when he contracted pneumonia. After not responding to antibiotics they discovered the myeloma was back. They are now starting chemo again with thalidomide despite him still being very unwell with pneumonia. He apparently doesn’t respond to Velcade which I hear is a standard treatment

My in laws are numb with shock and do not gather much info off their haematologist or simply that don’t want to know. Does anyone know any info on prognosis if you relapse so quickly following a transplant. He has had no symptoms of the disease except this recent pneumonia. I am worried sick. They are such a beautiful family and I can’t bare to see them go through this.

[dawnParticipant]

HI Kath
I am so sorry to hear this news. Can I ask what your farther in laws paraprotein had been reduced down to prior to the SCT and his age group?

What treatment plan was he on prior to his SCT was this thalidomide?

I send you my very warmest wishes and of course a speedy recovery for your father in law.

Kindest regards

[kathcoopsParticipant]

Thanks so much for your quick response Dawn. My father in law is 66. I’m not sure what his paraprotein level was as I get filtered info. I know they were really happy at his 90 day check. My mother in law said his bloods got to 10, but then 3 weeks ago they rose to 65 and are now at 650 but I’m not sure what these values are referencing.

As I said the info I have is vague. I know he was on steroid, thalidomide and possibly methotrexate prior to the SCT. My mother in law did say they tried Velcade but he didn’t respond. They are going to try <span style=”color: #272727; font-family: Arial; -webkit-text-size-adjust: auto;”>lenalidomide ASAP. I’ve just heard they i.e. Specialist think the pneumonia may have triggered the relapse. </span>

Its very sad as he seemed to be doing so well. Hardly any side effects from the SCT. He is a lovely man

[kathcoopsParticipant]

Just received more info. His current paraprotein level is 3/4. His lambda light chains were at 10, 90 days post SCT. 3 weeks ago they rose to 64, they are now at 690. The specialist thinks that his recent pneumonia may have triggered the relapse.

He is starting CHOP treatment tomorrow? And then lomanthomide next week.

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