[MMLParticipant]

Hi

My name is Maxine I don't have MM, but my younger sister was diagnosed just yesterday. She is only 35 is 7 months pregnant and also has a 3 year old. We are a close family and I'm trying hard to be strong for her as having read alot of the forums I know its going to be hard especially with a new born. I'd like to know if anyone has any experience of how pregnancy affects MM and what is the best way I can support my sister. The whole family are so worried.

Thanks

[BenzParticipant]

Maxine,

I don't have MM, but it may be a potential for me. To this end I am probably thinking about the same issues as you are for your sister and she is very concerned about.

Basically "What will we do if? What happens if?"

You have already started your support by actively looking for guidance.

All I can think of at this time is that you are strong as a family – let her know that you will be there to support the practical outcomes. Be there for her to vent her emotions.

[EvaParticipant]

Dear Maxine,
I'm sorry about what you're all going through. As time goes by, you will know more about your sister's illness – about what stage it's at and what treatments have been recommended for her.
I'm not an expert on this, but I imagine that most myeloma treatments are not very compatible with pregnancy. The good news is that she's due to give birth soon, and that often it's ok to delay treatment. Please let us know when you have a fuller picture.
In the meantime, I'm sure she'll have your loving support. I think I remember reading about a case in the US in which a pregnant woman was dx with mm. I believe she went on to see the child flourish and that she survived for a long time.
Best,
Eva

[tomParticipant]

Hi Maxine

Sorry to hear about your sister getting MM and being so young, i dont think you will know what treatment your Sister will be on at the moment?
Let us know where your Sister will be getting her treatment as we might have some one on here that is being treated at same Hospital.

If you need to ask any Q fire away and we will try to answer them as fast as poss.

Good Luck to your Sister (name?) and your Family on your Sisters road to remission.

Love Tom "Onwards and Upwards" xx

[MMLParticipant]

Thank you all for your words of encouragement. I will speak to my sister (don't want to give her name yet) about joining the forum herself. The doctor has mentioned Velcade as the treatment once the baby is delivered. She will be seeing a specialist at Kings Colledge, London, as we are based in London.

I will keep you updated as I know more.. there are loads of questions I need to know from my sister and her doctors, but it is still very raw so I will wait a little while.

Many thanks and blessings to all of you dealing with your own individual battles.

Maxine

[tomParticipant]

Hi Maxine

Thats not a problem at least your sister has got some one fighting her corner as am sure the whole family will rally round keep as much pressure off your sister and keep her calm.

Dont forget Ask away nothing is too daft for us to answer.

Love Tom "Onwards and Upwards" xx

[VickiParticipant]

Blimey Maxine,

When I read your post I felt so sad for your sister and you and the rest of the family. The mm thing is clearly no respecter of age…..when I first read up on it I thought Colin was young to have this at 55, but wow there are many many younger patients. I can understand the shock and trying to come to terms with.

Our thoughts are with you and your family. Ask any questions you like. No expert but any thing to help

Vicki and Colin x

[jackspratParticipant]

Hello Maxine. My name is Jacqui. I am 52 and was diagnosed with MM in Nov 2011. I live in London and I am under the Royal Free Hospital. I don't post on here as often as I would like to because I always seem to be so busy with my 2 daughters (aged 19 & 12), but whenever I do people are always kind enough to reply so I am sure you will get plenty of support. I have had 1st line of treatment (CTD) followed by a stem cell transplant in May this year. I am currently in remission and about to start a clinical trial so if any of this becomes relevant please feel free to ask about it. As others will tell you everyones MM affects them in different ways as does the treatment. All the same its reassuring to know there is always someone to bounce things off.when you need to. As a mother my main concerns are for my children and I am guessing your sister will be feeling the same. It is good that you are there for your sister looking for information as I am sure she will have many questions that take time to find the answers to. Wishing you well in all of this. Jacqui. X

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