[tomParticipant]

Hey Eve
Dont let the B U G G E R S Grind you down you both have gone through to Much to even worry about those that give you the shall we say " The Silent Treatment" its a sad indication to how our Dr's and Nurses (not all i hasten to add, if you are reading this Dr Jalihal or Nurses Helen (x2) Annie and Shaz and not forgetting my Little Tea Girl Tina you are bloomin great)
if the problem didn't exist they would and should have come to have a chat and sort it out.

As I say Tek No Notice Girl ur better than that

Love and Hugs xxx

Tom xx

[OutdoorsPaulParticipant]

Hi Eve
Great news for you and Slim so good to hear some positives8-)
cheers Paul

[zasrsParticipant]

Hi Eve
Wonderful news!!!! so sorry that your complaint was taken so badly. Don't let the B—–s get you down! Keep smiling

Sarah x

[HelenParticipant]

Hi Eve mmm it really is very sad that people take the huff when clearly the system is at fault not the individuals, here's hoping the next visit is better and they are more professional about it, don't let the blip dampen the good news.
Love Helen

[DaiCroParticipant]

I wouldn't worry too much about the apparent 'cold shoulders' Eve. My nurses actively encourage complaints from long term patients… I believe that they are confident that their care is professional and generally A-OK and that the problems are almost exclusively those related to processes and procedures… if they are addressed then the overall effect makes it better for everyone involved, patients and staff alike.

The news that you have made a complaint is bound to provoke raised guards until the nature of your complaint is perceived… once the staff realise that it is a procedural complaint and not related to general care then I am sure that they will silently applaud your actions.

Well done either way… when I think of all those times when you have been battered and beaten down by such tardiness and thoughtlessness I am moved beyond frustration to anger. Each time that I have suggested minor procedural changes to help the input and output of patients they have been listened too and acted upon… where they have not been acted upon I have been given good reason (which I have understood and accepted) why the changes would not be helpful.

More power to your elbow Eve. 🙂

Dai.

[eveParticipant]

Hi Dai
Well Tuesday was another day,bit frosty,but I did point out to a sister again it is no reflection on this department,went back again in afternoon for Velcade and things did seem a little bit better.

Slim is getting tired as he is half way through 5 cycle,it does show but still looks better than a few months ago(death warmed up)I know this because people say how well he looks,LOL

Have found some wonderful socks,that have no band at the top and these are helping with his legs,as always feels he has run a marathon,but the blighter insist on walking a couple of miles a day,no matter what>:-(

Hope you are keeping in good spirit Dai and planning a break ,a goal to look forward too. Love Eve

[DaiCroParticipant]

Hi Eve,

I am certain that the staff's unease will soon go away but the benefits of your complaint will last much longer, hopefully permanently.

Without being too simplistic I do believe that if you feel better and look better you generally are better – after such a long and drawn out period Slim deserves to look feel and be better – and I am sure that you feel the same and that Slim's general well being will be reflected in and on you. I would be a fool not to notice that on my 'good' days Janet is far more cheery and upbeat… which is why I love 'good' days. 🙂

As for planning a holiday we are both satisfied to stay at home and venture out to do anything considered 'normal'… after the past 6 weeks of chest infection (on its last legs but still there in the background) we are both delighted that i now feel able to start normalcy… its a great feeling and we both enjoy the results. We are both looking forward to the Xmas break , my favourite time of the year.

I saw my consultant on Monday and she doesn't want to see me until the 9th of January (in for bloods on December 20th so the results will be ready for our january meet) so God and body willing we can relax and enjoy all the goodwill and seasonal get togethers and jollies. I will allow myself a beer or two and the occasional glass of wine… I haven't touched a drop since last Xmas and the few drops I had then had no bad side effects so I'm looking forward to repeating the process – moderation in all things and enjoyments in the bag.

My son's birthday is on the 1st December… and that is the signal for the start of the Xmas season for me. I will be 58 on Xmas Eve and I aim to celebrate it quietly but meaningfully… I love Xmas. 😎

Dai.

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