[tomParticipant]

Hi Gill

I understand what you say about your Cat am same wi Dog "the Yorkie" 😉
as for Chest Infections well I think thats me also with this Bloomin MM.

Aint heard of a "Lung Nodule" ? what are they doing with it then Gill and what do they about it??

Stay well
Love Tom Onwards and Upwards xx

[LouiseAParticipant]

Thanks Megan, that's reassuring to know. It really is a wonderful feeling knowing that those stem cells are starting to do their job. It was quite emotional the moment we found out! Dad realises it's going to be a while before he feels totally better. The sickness still has a firm hold but be still manages to eat a little and drink lots. I imagine it will be a while before he can eat properly but what about the runs? Will that continue for a while?

I've often read your posts on Phil's SCT journey. I do hope that he is continuing to make a good recovery.

Very best wishes,

Louise x

[LouiseAParticipant]

Thanks Tom. It is so reassuring to hear that everything does not have to be 'normal' before he gets out – he's desperate to be home now!

All the best,

Louise x (definitely onwards and upwards!)

[GillypearceParticipant]

hiya Tom, only found out about it yesterday at my chest clinic appointment apparently it showed up on a ct scan that I had when I had pneumonia. Ive got to have another scan in April to see if its grown and then I have to have them repeated every 3 months for at least the next 2 years. Did the old googling thing and fright meself as you do – but I'm up UCH on Thursday for me latest pp results so am hoping Dr Yong can enlighten me. Hope you are keeping well and the young bride.

love Gilly xx

[meganjaneParticipant]

Hi Louise,

Phil was like your Dad, he managed to eat a little bit every day while he was in hospital but he did not enjoy it! Phil's upset stomach was quite bad for about seven days and then, although it got better, there was still an unpredictable nature of when he would need to dash to the loo for about another month but everything has settled back to normal now. Phil's appetite is also completely back to normal now three months post transplant so you can tell your Dad it will get better!

I hope Garry continues to improve now he has turned the corner, Phil's neutrophils re-appeared New Year's Day and it was a great start to the new year 🙂

Megan

[tomParticipant]

Hi Louise

Not a problem its now a wait and mor wait 🙁 but in the end it is worth the wait 😀 , your dad and you all will be thinking will it ever get better (we did) and one day your dad will wake up and feel 100% Better, not his old self am sorry to say but Better 😎 and that is what all this SCT was for its good to feel that better feeling 😎

Love Tom Onwards and Upwards (just like your dad will be xx)

[VickiParticipant]

Louisa

Hope your dad is continuing on the mend. It does take a long time for things to settle down and it seems like an age when they are in hospital! Colin hardly ate anything the whole time he was in hospital, was in a lot of pain, had said syringe driver and felt sick and tummy trouble! However once his bloods started on the up he did seem to improve. However it's only when you get home that real recovery can start….food here and there, small exercise routine, some ups and downs of not feeling well, feeling better and then down again…:-)

However this is all worth it and your dad will improve Day by day, Colin is now working 3 days a week in the office and some of days at Home….,still gets tired though. So best of luck to you.

Peter, you might be slow but you are making a sure recovery…..best of luck with the blood results. A positive attitude And mind is soooo important. Hope you enjoy your conference and best of luck with the blood results :-), worth celebrating you are doing well:-)

Vicki and Colin x

[WebsterParticipant]

I have just been given the good news that on day 14 they are sending me home. It has been a trial at times with all the usual problems particularly trying to eat when feeling sick all the time.Had no mouth problems. Stayed rigidly to the anti fungal regime laid out . Ambrosia Devon custards seemed to settle my tummy a bit . Hospital food is quite bland because they tend to overcook it to remove all the bugs.. My neuts are now 0.88. It is most important to stay positive throughout the journey . Obviously still a long way to go yet to get up to speed. As Tom says "onwards and upwards"
Thank you all so much for your contributions on my journey which has been documented by my dear daughter Louise.
Garry

[tomParticipant]

Well Done Garry you have beat my 16 days of "Lockdown" stay well and in a few months you will be in Top(ish)Form 😀

Even when you are home Garry you are still recovering so take it easy and sleep when your body tells you.

Well Done and Good Luck

Tom Onwards and Upwards

[VickiParticipant]

Well done Garry, you made it….what a result and beat toms days! 🙂 who is a show off then!

Remember to take your time, build up slowly and improvements will come. It has been a hard road but the real recovery begins at home 🙂

Vicki and Colin x

[Author]

Posts