Hello Pax,
It seems as though your decision to have no more treatment has been a good call, although not for all of us I am sure. :-0
I too measure my MM by light chains and while 1987 is high, it is manageable. You have been very fortunate to have no bone damage and the resulting lack of pain, which is a crucial factor in MM.
I too have never suffered from kidney malfunction although I understand that kidney damage is prevalent with MM, especially with Bence-Jones, Kappa Light-Chain MM.
Are you still under a consultant at the hospital? What have they advised? Do you work? Have you any family?
[quote][b]I have decided to have no more treatment 2yrs ago for my own reasons[/b][/quote]
To my way of thinking the 1987 Light Chain reading is irrelevant given the rest of your readings and given the rest of your circumstances they shouldn't worry you in the slightest… but there are too many unanswered questions for me to feel comfortable in making any sort of response to your query:
[quote]I have decided to have no more treatment 2yrs ago for my own reasons and was just wondering if anyone could give me any feedback on the level of light chain I have[/quote]
Still, I wish you well and I hope that you continue without any rise in your kappa light chains and that you remain pain free.
Dai.
Vicki 11 years, 4 months ago.
