[12fern34Participant]

Hi,I was diagnosed with MM in August last year.I had a stem cell transplant 7 weeks ago all went very well.However I am having pain in my long bones I was wondering if anybody else has suffered similar.
I was also diagnosed with peripheral neuropathy following the chemo for which I am receiving medication.

[kh0305Moderator]

Hi 12fern34,

Glad to hear all went well with the SCT. I’m a volunteer on the forum and my dad was diagnosed with MM back in early 2013. Dad suffered with bone pain too after his SCT. I’m afraid I cant remember now how long it carried on for, but I don’t feel like it was too long. The fatigue was the longer lasting side effect which he struggled with and during his remission period (until late 2020) he didn’t suffer with any bone pain. It was the bone pain returning that gave us the first sign the myeloma was back.

He is currently going through treatment for his first relapse and is suffering with peripheral neuropathy this time round, though he escaped it last time. I hope the medication is helping you with this.

Hope this helps a little and that the recovery goes well xx

[12fern34Participant]

kh0305, thanks for the info it has helped

[richfsModerator]

Hi Fern,

Well done on getting through the SCT, I’m glad that it went well. It’s a tough treatment, but effective.

Myeloma UK have recently trained some peer-volunteers to assist on this forum. I am one such person and was treated for myeloma in 2019 with VTD and a stem cell transplant.

I had a lot of bone pain before starting treatment and suffered some compression fractures in my vertebrae, but hadn’t had any long-bone pain at all. Last year, 2 years post SCT, I had frequent pains in my tibias (shin bones) which started to really concern me. A PET scan showed that there was “nothing to worry about” and a couple of months later the pain all but ceased. Do mention any pain that you have to your haematology team, but I’d say that I always have some residual pain, and that it can sometimes be in different places.

Do give us a shout if there’s any advice or support we can give,
Rich 👍

[12fern34Participant]

Hi Richfs,thank you so much for your reply,it has given me a great deal of confidence reading it,many thanks

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