[tomParticipant]

Hi Rebecca

Not sure if the Group still runs now as I haven't been for a few years and only went to two :-S
Next time you are in Scunthorpe you could ask Helen as she used to go also

Tom Onwards and Upwards xx

[Nanna59Participant]

Hi Bev

Sorry for the delay, I have only just seen your reply

My protein level dropped after my second round of chemo and then dropped again after my third and fourth round

How are you doing?

Kind regards
Chris

[rebeccaParticipant]

Hi everyone

Rebecca from Myeloma UK here, my role is to work with Myeloma Support Groups in the UK and Ireland. Unfortunately the Goole Myeloma Support Group is no longer running. The nearest Groups are Hull, York and Leeds. Up-to-date information about all the Support Groups can be found here http://www.myeloma.org.uk/patient-services/myeloma-support-groups/

If anyone has any questions about Support Groups, do not hesitate to get in touch with me on 0131 557 3332 or rebecca@myeloma.org.uk.

Kind regards
Rebecca

[bandityogaParticipant]

Hi Rebecca

I haven't attended a support group but I will try and go to the meeting in Perth, Scotland on 14 August. My husband has MM but is still in hospital, now 10 months with spinal compression.

Maureen

[rebeccaParticipant]

Hi Maureen

I am very sorry to hear about your husband. The Myeloma Support Group in Perth is a well organised and well attended Group. I know John Kenney, the Support Group Leader, and the other Group members would make you feel most welcome.

Kind regards
Rebecca

[jrkenneyParticipant]

Hello Maureen. Have just noticed your mail with Rebecca. I have run the Perth Support Group since 2002. We aim to start at 19.00 and to finish by 21.00. The group is friendly with between 12 and 20 attending. I assume that you are aware of the location of Perth Baptist Church in Almond View as this is on the Support Group website. Looking forward to meeting you on the 14th August.

[adamsp41Participant]

Hello Christine ..welcome to the mm discussion forum…a lot of common sense is spoke on here and always in laymans terms…invaluable to the ordinary person ..Good luck with your SCT and the following remission…any questions or concerns just ask …someone will pop up…stay safe…Phil

[Joanna12Participant]

Dear Tom,

I am also new to this site. My name is Joanna and my dad who is also my best friend was diagnosed with mm christmes eve 2012. He started with a protein level of 25 and with high dose chemo this dropped to 3. Mentally he found it really tough and at times just wanted to REALLY fall sleep (you know what I mean) Since then he looks great, and feels good. Consultants deciding at mo whether to do SCT due to age (he's 65 this year)and fitness. Can I ask how old you are? I am looking for positive stories to tell my dad to show that this isnt the end of the road and that he can still have years of good life to enjoy.

Thanks in advance.
Kind regards Jo

[TibbyParticipant]

Hi Chris thank you so much for your reply. Good news you are ready so soon,
I am still waiting for my bone marrow biopsy results.

Bev X

[bandityogaParticipant]

Hi John

I will try and make on 14 August. Hubby still in hospital so if I can persaude someone to visit him on 14th I will come to the meeting.

Maureen

[tomParticipant]

Hi Jo and anyone else that wants to know

I was born in 1955 (July) was a great year am sure Ha ha, Had my SCT in December 2009, anyone good at maths he he, so I am coming up to Post SCT 4 years this December 😀 and I will be 58 and 5 months young 😎

Am sure we had a thread ? not sure if it was this forum or the old one that you told everyone about yersen ??.

Tom Onwards and Upwards x

[Nanna59Participant]

Hi Bev

Hang in there your SCT will be here before you know it!

Kind regards
Chris x

[Nanna59Participant]

Hi Phil

Thanks for this

You are so right

I have been really encouraged by all the replies I have received and no doubt I will be posting lots of questions very shortly! Lol

Kind regards
Chris

[TibbyParticipant]

Hi Chris, thank you for your kind words. I am starting my chemo in tablet form next week. I feel a lot happier now I know what is happening to me and where we are going. I am keeping positive and feel very well at the moment. I am riding my cycle daily and doing a little yoga. I have great friends, family and a wonderfull husband and 2 sons, all who are there for me.

I will keep posting threads through my treatment and if I get any side affects will email the site in the hope one of you lovely people will have some words of encouragement for me.

Lots of love, Bev.X

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