Hi, everyone. Not exactly a newbie, as I used the forum when I was first diagnosed some 4 years ago,smoldered away for 3 2/1years,but needed to start meds.6 months ago.One thing to note,the news that I needed treatment after all that time hit me almost as hard as the original diagnosis and has taken some time to come to terms with.So be prepared to expect to be taken aback when – and lets hope it's a long way off- things change.I'm too old at 75 for SCT, and am on CDTa,which is going well.My main " side effect" is a damaged spine, which means fairly heavy pain relief, and a height loss of some 4". I am researching the two alternative surgery intervention for this, Vertobroplasty and Kyphoplasty, (any advise/recommentation concerning these gratefully received)I am interested in the kyphoplasty as this regains some of the lost height, but am getting a negative attitude to this – why do we have to drag information from consultants, no-one bothered to warn me about the height loss )Anyway, live life day by day,enjoy the things you want to do, and try to forget about it until you walk through the consultants door for a check-up. Easier said than done I know, but it's how I stopped this horrible disease running my life while it was smoldering
Good luck for the future, Jeff
marie1uk 10 years, 11 months ago.
