Hello Judy. Apologies for not responding sooner as have just read your email.
I was diagnosed on 23/12/16 with MM when i had high levels of paraprotein and haemoglobin resulting in a lot of pain. I was asked to sign up to the Cardamon trial at King’s College in London whcih I did. Following a bone marrow biopsy, MRI & PET scans, blood tests and so on, my first cycle of CarCyDex (Carfilzomib/Cyclophosphamide/Dexamethasone) chemo started on 09/01/17. Having nearly finished my 2nd cycle of initial 4 proposed cycles I am now almost pain free with thankfully no side effects. After completing the first 4 cycles, I will go through the computer randomisation of either having a STC or 2nd more instensive chemp therapy. I have since developed very minor fractures in my neck and spine but nothing too serious. Whilst the 18 month maintenance period is lengthy and on this trial you do still have a once weekly chemo to do, I believe that if you werent on the Cardamon trial, the 18 month maintenance would mean only regular Outpatient visits every few months. I am certainly more comfortable and in favour of being looked after on a weekly basis and receiving monthly updates on my progress from the Trail Consultant however I appreciate that everyone is different and may not share this view but trust my comments have helped. Please do not hesitate to contact me again if you have any further questions or request for advice and best of luck with your Husband’s treatment.
Regards
Paul
