Hi, I recently have been diagnosed with Myeloma and acute kidney failure .

This topic contains 4 replies, has 3 voices, and was last updated by  rabbit 3 days ago.

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  • #151068

    darkside
    Participant

    Hi, I recently have been diagnosed with Myeloma and acute kidney failure . I have been having dialysis 3 times a week on top of my chemo and have been fortunate enough to have over come the kidney failure. I am struggling with the fatigue that has come along with either the chemo or the myeloma. Is this common ? Is there anything that maybe helps you get through it ? I am normally a very fit 73 yr old but this is driving me mad.

    #151069

    12fern34
    Participant

    Hi I have had the same feeling of fatigue..unfortunately you just have to let your body rule,when tired ..rest and dont try to overdo things…… gradually it will get better

    #151070

    rabbit
    Participant

    Hi darkside,

    Welcome to the forum.

    Fatigue is a very common side effect of the chemo. As someone very active myself and only in my fifties, it was likewise very frustrating to be too fatigued during chemo to keep up much activity at all.

    As someone who has been there (I am now in remission), all that I can advise is to do what you can – especially as exercise is good for people with myeloma in many different ways – but don’t beat yourself up if that isn’t much. Your body is having to deal with both myeloma and chemo, so try not to be too frustrated and give it time.

    Once treatment finished and I was in remission, I gradually became more active. I cycle away flat out in the gym, lift weights* and walk many miles. It took a while but fitness can be regained.

    *I am relatively lucky in not having bone lesions. I checked with a physiotherapist and doctor first before restarting with weights as bones in myeloma patients can fracture easily (so this is an area to be very cautious).

    Regards
    Rabbit

    #151072

    darkside
    Participant

    Hi firstly thank you for your reply, I seriously hope you are right with being patient as it is driving me bonkers. The fatigue I assume is a combination of myeloma and chemo and my body will have to endure this. The good news however is that the dialysis pipes have been removed from my chest so I guess yhey must be confident that my kidneys are on the mend ( now at 21%). How about cramp ? do you get this ? any ideas .

    #151073

    rabbit
    Participant

    Hi darkside,

    I didn’t personally have experience of cramp during chemo, but some patients do get it.

    I suggest that you:
    – Tell your healthcare team. They may prescribe or advise that you take electrolytes. In the meantime you could try a bottle of Lucozadw (which contains electrolytes) and see if that helps..
    – Keep welk hydrated

    Regards
    Rabbit

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