[shytalkParticipant]

I’m new on here so please be gentle with me. I was recently diagnosed with MM and I start treatment next Monday 20th June.  I’m still numb because its been a terrible shock to me and I just can’t get my head round it. I ‘ve suffered from depression and anxiety problems for many years and to get this diagnosis has really torn me apart. At the moment I am on a downer because yesterday I went for my bone marrow biopsy results and had half a diazapam to get me through it,I was ok yesterday but today very low. I joined this  web site to see if it is the same for others after diagnosis, and also to give me the chance of opening up a bit.

[louishenryParticipant]

I well remember the feeling of panic and trauma in the first few weeks after diagnosis but it’s amazing how soon we get used to it. There’s no cure but the treatment is effective and as it begins to work you will feel a bit calmer and more positive. This site is brilliant for reliable information. I was diagnosed 18 months ago but after 12 months of chemotherapy and a stem cell transplant I’m almost back to full fitness, so be patient and do everything the hospital advises.

[shytalkParticipant]

Thanks louishenry for your reply, at the moment i’m going through so many emotions, i’m sad, scared, anxious, and many other things. My big problem is  that I live alone and have nobody with me for the majority of the time,my closest relative had a stroke 2 weeks ago and I dare’nt even tell her about my condition in case it affects her. It just seems doom and gloom for me and being a pessimist regarding health makes things worse.

[louishenryParticipant]

Having myeloma is horrible so feeling sad scared and anxious is very understandable. Being a fairly uncommon cancer you will probably only meet other people with the disease at the hospital. If you do Facebook there is a UK Myeloma Support Group you could join. This site is clear and informative but Facebook is good for chat and mutual support. It does make you feel part of a community which will help if you live by yourself.

[susieParticipant]

Hello Shytalk

Please don’t feel you are any different for feeling sad and scared, I’m sure we all feel that way at the beginning of this M M journey. I remember at the start of my treatment I was told by my consultant “most people sail through this treatment with no problems” So when I started treatment and felt so poorly I felt something was wrong. Like yourself I too live alone and all I wanted to do was talk to others who were further down the journey. This site was a real saver and I’m sure you will find knowledge and comfort here. Don’t hesitate to contact the MUK nurses too, they’re fantastic and so helpful.

I do wish you the best. Where are you being treated ? Find out if there is a support group near you.
Try to be positive, this is a disease that can be controlled.

Best wishes

susie

[shytalkParticipant]

Hello Susie, thanks for your reply. With it only being a recent diagnosis i’m still finding my way round the various w sites and groups. I cant get it out of my mind at the moment,I have very little confidence in anything I do,even phoning for a dental appointment I need to have for one of the drugs involved was  a massive effort. Its hard to explain but its like being in a different world.

I’m being treated at Doncaster, and so far I am totally overwhelmed by the care shown by the staff and that’s after one visit for the bone marrow sample.The consultant at the diagnosis also left me with the key person who I will be involved with during treatment, she was really nice,and immediately made me feel at ease,I think there is a support group in Doncaster and I will try to find out more. It actually feels good on here to be able to open up and I’m sure that can be a positive part of this situation.

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