[paulcjwParticipant]

Hi all

I am new on here. My husband had smouldering myeloma for 5 years that has progressed very recently and aggressively in the last 3 months. He was scheduled for the normal first line chemo treatment starting next week but we have just had a call to say they cannot do this due to high levels of cytogenics. They are going to discuss a trial with my husband this week. This is very scary and reading the internet ( I know know the best!) this is not a good prognosis. He is only 51. Has anyone been in this position?

[rabbitParticipant]

Hi paulcjw,

Welcome to the forum.

I can understand your worries. Please bear in mind that a lot of material online relating to myeloma is old: treatments have been improving, as indicated by the possibility of your husband having a trial – in other words new – treatment. Therefore the situation may not be as adverse as you have read.

As you have probably read, about 25% of patients have cytogenetic abnormailities: I am one of them. Could you please provide more detail on your husband’s cytogenetics, as there are many different kinds? For example, mine are t (4, 14) and +1q.

Regards
Rabbit

[Author]

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