Holistic approach

This topic contains 1 reply, has 2 voices, and was last updated by  robert0439 5 years, 7 months ago.

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  • #140395

    dougcarlo
    Participant

    There seems to be hardly activity on the amyloidosis forum. I was diagnosed with AL amyloidosis in October of 2018. Started CyborD regime in November. Currently in maintenance mode now. But what I’m curious about if anyone has tried the holistic approach to multi myeloma or amyloidosis? Thanks in advance

    #140396

    robert0439
    Participant

    Hi. I was diagnosed with Smouldering Myeloma in 2014, one year after I had retired at the age of 61. Together with my wife, we did lots of research on how to keep the cancer stable for as long as possible. I have never smoked, avoided alcohol, and meat for at least 20 years. I do however, eat lots of fish so am really a pescataria rather than vegetarian. I excercised – albeit quite lightly regularly and took several vitamins and which included Curcumin. My Paraprotein levels at this time were stable at around 20-25.

    This lasted until mid 2017 where I became very anaemic and my Paraprotein levels increased to around 35 so in July of 2017, it was suggested that I look at having a stem cell transplant which I did in January of 2018.

    It was to say the least quite brutal, but looking back on reflection it was the best this for me, as I now feel literally as there is nothing wrong with me and pretty much apart from my continued diet and vitamin regimen, take nothing else except for Zometa (Zolendronic Acid) and Duloxetine to control pain and discomfort in my feet which is a side effect of the chemotherapy I underwent. It has however, taken me around 18 to get to where I am.

    Anyway, you may be interested in the attached link as I found it quite useful:

    I Have Multiple Myeloma. What Should I Eat?

    Good luck and best wishes on your journey.

    Regards,
    Robert

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