Hi Ree2112,
Being a myeloma patient is tough, physically and mentally, including during remission.
One of the first things that I asked my doctor when I started treatment was: how many patients work full time? He said that very few do so. Some had already retired, but among those who were working, most go part time or stop working altogether.
I went on sick leave for the first few months, then gradually built up my hours again, but I couldn’t work full days due to fatigue. My employer kept paying me (although the rate reduced for the hours when I couldn’t work).
Although I am in remission, I have had side effects from eye problems (fixed a few months later with cataract surgery) and I sense that my brain fog is slowly increasing. As I need to really be at my mental best to my work, ‘full time’ became more and more difficult, and a misnomer due to the fatigue. I therefore came to a deal with HR to go part time and focus on less mentally demanding areas.
I don’t feel one twinge of guilt – and neither should you. I was open and honest from the start, and followed my employee handbook to the letter.
Do what is right for you, and look after yourself.
Regards
Rabbit