Hi Karen
We all know Myeloma acts differently with different patients.
I think you doctor is doing all she can at this present time,MRI,plus BMB. The pain could be just the collapse on the vertoblaster,when she is talking about wholes, I can only assume its like lesions where you have a clump of live cells,when treated with radiotherapy. Or chemo because they both do the same thing,it leaves a hole , Slim has them on his skull plus shoulder blades,this weakens the bones if in an awkward place like spine,causing pain. If you look at your results,it will tell you how much the Skelton is effected.
May be you should see about going on Oxycodone slow. Release and topping up with paracetamol ,your pain does not seem to be in control,see your own doctor,my attitude to pain is no one should suffer heavy pain,and at this stage of the game when bones are effected,its a none starter,take what ever relieves the pain. Plus the fact some people have a high pain threshold than others,Slim can take a lot of pain,he now has BMB every 2 months.
It's just awaiting game Karen,its an awful position to be in,because you build your self up for remission,it hits home hard,so try to be objective about it,a BMB will be a true reading of your condition,if it shows Myeloma cells they have caught it early.,might not treat it until other symptoms appea ,if its clear you know your blood results are a true reading.
It's a hell of a roller coaster isn't, it.:-P Love Eve
