[shadyladyParticipant]

I’m confused.  My husband had his SCT in March and I had originally read and therefore always understood that after around 6 months post SCT he would get certain immunisations.  When we left the hospital we understood that too from the SCT consultant.

But now back under his usual consultant at another hospital, at the last appointment in September, he said it wasn’t necessary?!

Ive since read a Myeloma UK leaflet listing the necessary inoculations.

Does anyone have any idea why this might be.  My husband is 70.

Sonia

[tonyfParticipant]

Hiya Sonia, I had my second SCT in March this year. I am 72 years age. I had my first SCT 4 years ago, having had 6 months of treatment on the myeloma XI trial. After each SCT  my consultant gave me a pre printed form listing all of the inoculations that I was to have. I have just had the second round, that is 8 months next round due at 12 months, also had a flu jab, but NOT the shingles jab.

Hope your husband is doing okay, not too many difficulties getting back to a normal way of life.

Best of luck

Tony F

[shadyladyParticipant]

Hello Tony,

Thank you for your reply.  Yes I was aware of the no shingles jab, just cannot understand the opposing instructions from the two consultants…..any ideas?   Was yours an autologous transplant or donor?

Best wishes,

Sonia

[louishenryParticipant]

Hi Sonia. It does seem to vary from hospital to hospital. I’m coming up to a year after stem cell transplant and tomorrow will be going for my first baby jab. I had a flu jab a fortnight ago. This disease is so individual I don’t think there is ever one standard treatment so I would trust the advice of the consultant.

[tonyfParticipant]

Evening Sonia, no I don’t understand why two consultants should have differing opinions, it does annoy me, particularly when myeloma uk print literature on the subject.

What part of the country do you live in and which hospital does your husband attend? I live in Leicestershire and attend the Leic Royal Infirmary, I find them superb, under pressure like any other hospital, but they always find time for the patient and always professional.

Just a thought can you print out the myeloma uk leaflet and take it with you at your next consultation?

My SCT were both auto, I had enough stem cells harvested for two transplants, currently my pp’s are not quantifiable, so I am on a watch and wait, no drugs other than zometa every three months, hope it continues.

Hope you can sort this out with your husbands consultant.

Regards

Tony F

[shadyladyParticipant]

Hi Tony

Main hospital is Queen Alexandra Hospital, Portsmouth.

SCT carried out at Southampton General Hospital.

I do have the Myeloma UK leaflet which I’m definitely taking along next week.  I will let you know how it goes.  The consultant might not remember my asking last time when I bring it up asking for the pre printed form you mentioned!

Yes there are enough harvested stem cells for a second transplant should it be needed.

Yes I hope you keep well on the zometa.  BTW my husband is waiting to go back on the zometa.  He needed dental treatment….root canal……I expect you know once you have biphosphonate, it’s in your body for good…..but we also discovered the dentists can never do extractions because of the side effects of biphosphonate (jaw bone destruction).

Best wishes

Sonia

 

 

[Author]

Posts