Hello all,
I was wondering how others have fared
during IRD treatment , with side effects and Recurring infections.
I started back in August 2024 after relapsing following 2nd level DVD (2022-24).
Fortunately, my consultant is pleased that the MM is back in remission.
This week, I’ve had to delay cycle 10 due to a chest infection. I finished a course of strong antibiotics last week but despite my team being happy with my bloods, they’ve postponed dispensing my medications as I’m still showing signs of an infection. I’ve had to shelve a couple of other cycles due to the antibiotics, the sinus and chest congestion has been on a different level.
I’ve also noticed occasional hand cramps, night time calf and foot cramps too , feeling weakness in legs .
I’m a pretty energetic 56 year old, and I have a 3 year old son who’s on the go all the time. Generally, I can keep going although I’ve found the last few weeks , I’ve felt quite drained on and off.
A different sort of fatigue I haven’t noticed before. It doesn’t help that my son’s sleep routine has regressed and we are often woken up at 1am, 2am ,or 3am , sometimes, twice a night.
Apologies for the long post, I hadn’t intended to add so much detail. But I am keen to hear other patients experiences.
Grateful for any feedback.
Regards,
Andy