Is velcade effective?

This topic contains 3 replies, has 4 voices, and was last updated by  Anonymous 10 years, 8 months ago.

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  • #114569

    rachel2014
    Participant

    Hello,

    My brother has recently been diagnosed with myeloma and is being given Velcade and steroids alone – ie no chemo on top. Has anyone else had similar treatment? I would very much appreciate anyone’s advice or experience. He is 74.

    Thanks,

    Rachel

     

    #114570

    Philipandfiona
    Participant

    Hello

    The complicated answer is yes and no. Yes, it works for some, no it doesn’t work for others. That’s one of the horrible things about MM. But on the whole it is a good drug. If your brother is worried that he has not been offered chemo with it, then perhaps a call to his consultant to find out his/her thinking would set his, and your, mind at ease.
    There are a few ways of treating this disease, and most doctors will try to find the best way for a particular patient, within what NICE allow them to do. Perhaps they felt that as the chemo element of the treatment is or can be quite brutal, they would see if they can get away without it initially.

    My understanding is that Velcade works best in combination with steroids, and the chemo is an added weapon, but if you need to drop one, then drop the chemo.

    My husband is the MM patient. He had CTD first, and then at relapse got VCD. It worked very well, so that he got to drop the chemo part way through cycle 3, and is not on velcade for as long as possible until the allowed doses run out. The MM is undetectable at present, and we hope that the Velcade will keep it that way longer than if he stopped taking it.

    Good luck to your brother. Perhaps if you or he does not want to call the consultant, you could speak to one of the nurses on the infoline here. I haven’t had to use them myself, but everyone who has has said how wonderful they are.

    #114579

    tom
    Participant

    Morning Rachel

    sorry to hear about your Brother, and I wish him luck in the road to remission.

    i was diagnosed in 2009, had CTD leading up to the SCT in dec 2009. That gave me four years remission and drug free.

    my myeloma has returned and am now on Velcade and Dex, just started my fourth cycle on it and to be fair it’s treated me pretty good, not too bad with side effects to be fair.

    any Q then please ask away.

     

    tom onwards and upwards xx

    #115007

    Anonymous

    Velcade may be a particularly good first choice of myeloma therapy if you have kidney problems, which are a common complication in patients with multiple myeloma.

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