[jacquie57Participant]

Hi I don’t post on here often but I’m always reading posts. My partner Geoff has relapsed after 18 months remission.  we found out the week before Christmas. Off to clinic next week to discuss drugs we think it will be velcade as he had revlimid to start. 🙁

[MrsLParticipant]

Hi, Sorry your husband as relapsed. I relapsed in November following a stem cell transplant in May. I also had Revlimid for my initial treatment and have now started Velcade. It seems to be the standard treatment at first relapse but I was also offered the MUK5 trial which compares Velcade with a newer drug which may have fewer side effects. I opted for velcade as I can have that at my local hospital rather than travelling to Leeds for the trial and also I could start the treatment straight away rather than waiting for a referral to Leeds.

[VickiParticipant]

Hi jacqui and Linda

Sorry to hear of the relapses. My olio was the same. A huge blow. It wasn’t supposed to happen for years and years in our minds. Still….Colin’s on the third cycle a
Of valcade And seems to either Get very very tired or is like a human Dynamo on the steroids. It’s a real roller coaster. We only have one set of results and the light chains came down by 1000 but we have nothing to measure that by. We might know cycle two results tomorrow but don’t see the consultant until 12 fen to understand what they mean. I just hope its a reduction !

Hope you are well

Vick and Colin x

[Author]

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