[AmelieParticipant]

Hi Dai,

Good to hear thalidomide wasn't that bad… Of course my impression is influenced by the reports from the 60's and 70's.
We are planning another concert together and I am wondering if it is possible to conduct while being on thalidomide and corticosteroid, but I hope so!

John's stem cells were collected in only 4 hours so apparently they have been very fast and vivid. He has got the impression that he will be given 3 sct, but maybe he just misunderstood – he is not very good in asking the right questions. We will have to sort this out.

Best wishes,
Amelie

[AmelieParticipant]

Hi Mavis,

Thanks for your good wishes, it means a lot!
Definitely John is in a much better condition before this sct than before the first when he had gone through the surgery in his back due to the loss of 2 vertebraes.

The 2 years which have passed have been absolutely wonderful. We have enjoyed every second, been laughing a lot and had a lot of great experiences. We have to be grateful for that.

Love
Amelie

[DebsParticipant]

Hi Amelie

Sorry to hear about John needing a second SCT but sure it will all be fine!

Just a thought, but what about those Callipo ice pots that are full of lots of little flavoured ice balls? Think it's callipo or calypso or something???? Might be a bit more pleasant?

Debs x

[AmelieParticipant]

Hi Debs,

I don't know if they are available here, but I will check it out – if not there will for sure be something similar. Can the patient bring his own ice and can all kinds of ice be used? Maybe even vanilla ice? Or should it be water based?

I really hope to find an alternative, because after last time he couldn't even watch someone drinking a glass of water without vomiting. Apart from that he managed the whole thing very well without being scared or sad at all, but that ice show was for some reason traumatic.

Best wishes,
Amelie

[Author]

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