Just wanted to come back and say hello…..

This topic contains 4 replies, has 5 voices, and was last updated by  ner 11 years, 5 months ago.

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  • #95487

    onlyme
    Participant

    Hi everyone, a few of you may remember me… Only me … Angie !
    On July 3rd it will be a year since my mums passing and my thoughts have wandered to how the Myeloma forum is going and to how those familiar names/faces are coping.
    I gained a lot of support from this group. And I suppose by me being here now, I feel some comfort!!!

    My mum had a transplant at Nottingham and had the all clear last May 2012… All was going extremely well and we managed to create some lovely memories before the shock of the last two weeks of her life…
    Temperatures kicked in and sadly she developed Plasma cell leukaemia which is extremely rare and very quick in its progression. A complication of myeloma.

    I stayed with her in the Macmillan and experienced the last ten days of her life in a state of shock pain and disbelief. I had to have counselling afterwards and am pleased to say a year has made all the difference. I still miss her desperately but am learning to cope with the void in my life. My Dad is doing well too. And we are helping my sister.

    I am sending all my love and support to everyone coping with myeloma, however it has presented to you, as each case is so different. May you all stay strong and keep talking to each other and more importantly keep being there for each other. I just wanted to come on here and say hello again!

    It's Myeloma awareness week coming up, so lets stand out from the crowd and Keep Myeloma out there.

    And on July 3rd I will be raising a glass to my very brave mum and to every other family who is going through or has had to go through this journey.

    Cheers!!

    XXXXXX Angie XXXXX
    Aka "only me"

    #95488

    eve
    Participant

    Hi Angie

    I remember its only me,the shock and not knowing if mum should know? Mum chose her own path!!!A year so soon,time passes quickly but memory,s stay as if it was yesterday ,

    It,s really nice of you to think about us,and for you to remember people are still here living with Myeloma,things happen which no one has control of,you just make the best of every thing you have.
    So glad family is coping with the loss of your mum,she was unfortunate getting another cancer ,it is known and one of the pit falls,but you have to make decisions which ever path you chose.

    Make it more than one glass!! Life is for living so enjoy.Eve

    #95489

    wendyduffield
    Participant

    Thanks Angie for your message of support, I am glad you have got over the shock and distress of what happened to your mum and are learning to live with her absence. As Eve says life is for living

    Wendy x

    #95490

    Vicki
    Participant

    Hi angie

    That's so kind…..I remember you and your mum so well. People say there's no one like your mum….my mum is my best friend 🙂 a glass raised to your mum, you and all your family 🙂 living a different life after your mums passing 🙂

    Vicki and Colin x

    #95491

    ner
    Participant

    Hi angie,
    Im not familiar with your journey unfortunately but just read your post and felt the need to reply! our myeloma nightmare hadnt started last july, my mum was diagnosed in september. Your post just brought a lump to my throat and i shed a few tears! im so glad to read that you now are starting to feel a little stronger, i am so sorry for your loss. I cant and dont want to imagine what you went through although your post did hit a nerve. I suppose its a cliche but time does help doesnt it. My mum is scheduled to have her transplanr next month and so we are all incredibly anxious, my mum is very strong and positive, i just wish i could be the same. its a scary time and there seems to be so much more to a SCT than we realised.
    im glad to read that your in a good place now and hope that your dad and sister are ok too.
    lots of love

    ner xx

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