[myrnaParticipant]

Hi. I am from South Africa.  My husband was diagnosed with MM 3 years ago. He was has been on thalidomide ever since. He takes 200mg daily. He is on zometa as well. He has responded veey well to this treatment.  However,in this last month his kidneys have deteriorated. His       e GFR is 29 ml/min/1.73 m2. His creatinine ia 202, which is  very high. This is a sudden change and we do not know the cause. Can diet improve this? I do not want dialysis as I feel it puts extra strain on the body.

You are so fortunate to have a medical system with so many MM specialists.

Kind regards

Myrna

[ellenModerator]

Dear Myrna

Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.

Some anti-myeloma treatments, alongside some supportive drugs such as zoledronic acid (Zometa®) and indeed the myeloma itself may have an effect on the kidneys, and kidney function is monitored routinely in myeloma patients here in the UK.

If your husband’s myeloma is currently stable then his doctor (haematologist ) may decide to stop his zoledronic acid and restart it again if necessary at some point in the future.

I’m not aware that diet can improve kidney function – although it is generally a good idea to have a healthy well balanced diet where reducing salt intake may be better for the kidneys – but I do know that it is very important for your husband to try to drink 2 -3 litres of fluid per day – this will go a long way in helping keep his kidneys flushed. However, that alone may not be as effective as dealing with the cause of your husband’s deteriorating kidney function.

Here is a link to one of our publications which may be helpful: https://www.myeloma.org.uk/information/myeloma-uk-publications-list/symptoms-and-complications/myeloma-and-the-kidney/

If you have any further questions, please feel free to email directly to askthenurse@myeloma.org.uk

With best wishes

Ellen

• This reply was modified 7 years ago by  ellen.

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